Here we go again

Round 9

Its 9am on Wednesday 31 August and here I am again at the airport waiting to fly for another quick trip to the uk to hopefully collect a couple more eggs.

After seeing Dr Greg yesterday and having two follicles ready for collection, one on my right ovary (21mm in size) and one on my left ovary (17mm in size) he advised that we trigger me yesterday evening and that collection happens on Thursday morning.

Having juggled various logistical challenges around last minute flights to the uk (extortionately priced with limited availability), work commitments (missing one of the most important meetings of my career, thank god I have an amazingly understanding boss!) and a trail of back and forth emails to the uk clinic (what medication to take, exactly when to take it etc), I am finally at the airport and waiting to board my flight to the uk!

This time last year I was three rounds in, zero eggs frozen and had virtually given up any hope of becoming a biological mother. I realize I am still a long way off from that reality, but I am for sure one step closer to this possibility and that fills me with enormous hope and happiness.

lessons learnt

I remember the strangest things That my parents told me as a child.  No tattoos, don’t ride a motorbike, don’t tell your brothers or sister I gave you that extra cookie and the list goes on.

My father, one of the people I admire most in this world, taught me two valuable things that have stuck in my head and ring in my ears day in, day out and have especially done so through my egg freezing journey.  “Life is not fair” and “Never ever give up”.

I know as a child these words were nothing more than words, It is only as I have grown older and weathered this world they have had real meaning, meaning like they had for my dad when he was a young child. Let me explain.

As a child my father had a potentially fatal illness. An illness that he contracted from a nurse while he was in hospital having his tonsils out. The doctors didn’t think he was going to make it, Infact they said if he did he would definitely be wheel chair bound. At aged 5 my father found the strength to survive this illness, he learned to walk again and managed to live a normal healthy life playing sport to a high level and doing almost all the things that anyone his age would do, even with a slight limp. He ackomplished anything he put his mind to and didnt wallow in self pity or dwell on how contracting this rare disease a freakish way was so unfair. He made the best of the situation he had been dealt.

My father is a great man, he exemplifies honor and integrity. He is exactly the kind of man I hope one day I am lucky to end up with. I firmly believe that overcoming this illness at such a young age gave him the strength and character he has today. I am so thankful he never gave up fighting as a child and that he taught me and my siblings the valuable lessons he learnt at such a young age. I know without a doubt they are lessons that have helped me become who I am today and they have helped me navigate this journey, which at times has been soul destroying.  Thank you dad for helping me be strong. I love you.

I’m Not Alone

Round 9

Copyright: softlight69 / 123RF Stock Photo
Copyright: softlight69 / 123RF Stock Photo

On Wednesday this week I went to see Dr. Greg in the UAE.  It was good to see him, he’s always so chipper.  He asked me about my time back in the UK before he did my scan. I never ever thought I’d actually say that I will miss my visits to see him and his lovely nurse.  I used to dread that clinic and now people actually know my name.  I wouldn’t go as far as to saying I look forward to my visits but I don’t dread them any more, even the blood tests!  I have actually become quite friendly with the two nurses who stick needles into my arm every few days, now that’s an achievement!

A Story of Hope

Before my scan Dr. Greg told me a story which has given me even more hope.  It has made me realize that I am really not alone which I so often feel, largely because people just don’t talk about ‘egg freezing’ especially here in the UAE and even in the UK its just not a dinner conversation.

Dr Greg told me about a patient he has (he didn’t break doctor patient confidentiality don’t worry – I got the very top line story).  She is slightly older than me, in a different situation as she married of Arab decent and I think her husband is local.  They don’t want to have children quite yet (not quite sure why as I can say without a shadow of a doubt that if I was married I wouldn’t be doing this, I’d be diving right into motherhood!), so she decided to freeze her eggs.

A Magic Number

Her collection has been even less fruitful than mine, having at best one egg each round.  He told me about this girl’s determination and will power and how over her journey she now has 19 eggs frozen!  I didn’t ask how many rounds she had done or for how long she had been doing this but I would assume over 20 rounds and probably almost two years.

Apparently 20 eggs frozen is her magic number.  He said he never ever thought she would get as far as she has, but it has been through sheer determination and will power that she has almost reached her goal.

If she had been told that it was too late or that there was no hope for her at the start of her journey then she wouldn’t be where she is now with almost 20 eggs frozen and keeping her dream of becoming a biological mother alive. I don’t know this girl and probably never will, but as he told me this story I had this strange desire to know her .  I wanted to tell her how amazingly strong she is to have gotten this far.  We are from completely different backgrounds and have completely different situations, but I think we would bond over our journeys, discuss how we came up with our ‘magic numbers’  and probably have a bit of a laugh (and cry) together.

I hope one day Dr. Greg can tell other patients my story with as much pride and give other patients like me as much hope as this story gave me.

More Dr. Gregs

There should be more doctors like Dr. Greg who are willing to give people like me and this girl a chance.  I know it is important for doctors to be realistic about the chances of success, but I have also learnt how important it is to be surrounded by healthcare professionals who are positive and willing to give things a try and Dr. Greg was and is one of those.

If I had listened to things I had heard at the start of this journey then I would never have even tried to freeze my eggs. I would have walked away and maybe gone down the path of trying to be a single mother using donor sperm, I don’t know.  Getting to that point is another emotional and phycological hurdle a person needs to get over. I may well have to get to that hurdle one day soon and figure out if that is for me, I know that but for now I am so thankful to Dr. Greg for taking a chance with me and giving me hope when others told me there was none.

Back to My Story….

Anyway, back to round 9 and day 6 since starting stimulation and it was time for a scan.  The scan was not as positive as I had hoped.  I felt very different during the start of this round. This is to be expected as I had a different trigger shot in round 8 and had gone straight from collection into stimulation again and I had experienced more headaches, spotting and felt really really bloated and tired during the first five days.

I hoped my scan would show that this round was working and working really well but sadly it wasn’t such good news.  One follicle on my right ovary and one on my left, both small (10mm and 8mm respectively).  Dr. Greg did say it was still early and that I should take a blood test today for estradiol as a bench mark test (today’s result wouldn’t mean anything other than to show if my next estradiol test result was increasing or not) and continue taking 225 IU of Gonal F each evening.  Then come back for a blood test and scan on Sunday to see if my estradiol had increased which would indicate if follicles were growing or not and if any more had appeared from the scan.

So here I am mid weekend hoping that come Sunday things will be looking good enough to continue with stimulation and hopefully I have a couple of eggs to collect the middle of next week.

I am trying not to get my hopes up because I have done that so many times before and the minute I do, things tend to go the opposite way to the way I want them to.  So instead I am trying to be quite zen and pragmatic about the future and wait and see what Sunday will bring.  What will be will be….. I keep reminding myself life is a journey not a destination.

 

Great Eggspectations

Round 8

Great Eggspectation

Egg Collection for Round 8 took place on Tuesday 16 August. It has taken me a few days to pull myself together emotionally and be able to write this entry.

Eggspectations were high

Going into egg collection things were looking great. Estradiol was high, LH was low and there were four good looking follicles between 20mm and 16mm so I hoped that I might be able to collect four mature eggs this time. You really would think I had learnt my lesson to NOT think too far ahead and to expect the unexpected, but it is just SO hard not to get your hopes up.

It is time to trigger

I took the trigger injections as instructed at 8pm on Sunday 14 August. It was a different injection to the usual trigger shot I take, but this was because I was wanting go straight into another round right after egg collection so the doctor had given me a trigger shot with a different dose of HCG so I could start another round straight away after egg collection.

I spent the next 36 hours after the trigger shot eating relatively healthy, doing light exercise and putting a hot water bottle on my tummy to ease the slight cramps that seemed to be happening this time around.

Collection Time

My mum dropped me off at the clinic at 7.15am on Tuesday morning, everything was as it usually is, apart from, to my great excitement there were new patient gowns! Instead of being the usual light blue they had changed to a nice navy blue (it’s the little things!). I was told they are slightly less see through!

A doctor I had never seen before came to see me just before I went into the collection room. He seemed nice enough but as with all my visits to this clinic no one explained who was who and what was happening. That is one of the biggest gripes I have with this clinic, they just don’t tell you what’s going on!  Call a spade a spade people! Have those difficult conversations. Tell me how it is, tell me what is going on and how bad things really are!

I followed this strange doctor into the procedure room where I would be put to sleep. A cannula was put in my arm by the anesthesiologist and my legs were strapped in to place. If it had been my first time I would have been scared, but I wasn’t at all, those feelings were long gone. I was just looking forward to the drugs that would put me out and to waking up back in the recovery room.

I saw Dr Collection walk in, there was a quick hello and then I was off in another world.

Waiting… Waiting…Waiting

I woke up 15 minutes (yes that is really all the time it takes) later in the recovery room. There was a nurse offering me some water and trying to mop up the blood that was spurting out of my cannula for some reason. I was given an IV with paracetamol and about 30 mins later I was able to get changed and head upstairs to meet the embryologist. I still hadn’t been told how many eggs were collected which was always the bit I dreaded. My first two failed cycles last year no one told me until I was called to see the doctor, but then when I had collected some eggs in more recent rounds the nurses had told me straight away, so I was feeling very nervous and trying not to read anything into it.

I met with the embryologist who wasn’t able to tell me too much at this stage other than they managed to retrieve two eggs, the other follicles didn’t have eggs in sadly. She wasn’t able to tell me if they were from my left or right ovary or if they were mature. I now had to wait 3-4 hours for her to watch these two eggs under a microscope to see if they were mature and ok to be frozen.

Are you kidding me!

Prior to heading home I was told I had an outstanding balance of £10. When asked what this was for I was told £5 for antiobiotics and £5 for paracetamol.  Having just paid this clinic over £5000 for this cycle alone (scans, blood tests and medication) not to mention the fact that I don’t actually have many of my scans in the UK so the clinic is making a savings from me on that, to ask me for an additional £10 for things that I had never been charged for in the previous 8 rounds, I found to be a real cheek!

When I questioned these costs I was told they have decided they now have to charge extra for these things, something their “new management” had decided but failed to tell any patients!

Emotional, livid and tired I paid the £10 and got a taxi home, it wasn’t worth the argument.  The amount of money was so small compared to the thousands of pounds I had spent to date, it is just the audacity of being charged for things that a) I hadn’t been charged for in any of my previous 8 rounds and b) I would question I even needed as I wasn’t in any pain so intravenously administered paracetamol I’m not sure I needed.

This clinic has time and time again made me feel like a business transaction not a privately paying patient in search of healthCARE.  They really have lost the ‘care’ part of that word!  If I wasn’t so far into my egg freezing journey with Dr Collection I would definitely change clinics.

I waited until 4:30pm and still no phone call from the embryologist.  Usually I would get a call about 3pm, so again I was trying hard not to read into anything but why hadn’t she called?  Finally at 4:45pm I called the clinic and asked to speak to the embryologist, I was told she wasn’t available and needed to call me back.

I waited a painstaking 10 minutes for her call playing every scenario over in my head….. I had told myself NOT to do this but its SO hard.  Why hadn’t she called already?  Finally the call came in and she told me that both the eggs they had collected were mature and could be frozen.

Shattered Eggspectations

I’m not sure why I cried when I got off the phone but I did and it didn’t stop until I cried myself to sleep that night.  I didn’t really know why there were so many tears, the release of another cycle being over, getting two mature eggs, the disappointment of not getting four, definitely all the hormones! I was glad to finally fall asleep that night and wake up the next day hopefully feeling stronger, more rationale and ready to get into Round 9 in just a couple of days!

Dual ovarian stimulation

Round 8

Today, Sunday 7 August, day 3 of my period and a scan with Dr. Gregg.  In his own words things are looking good for this month with three follicles on my left ovary and one small one on the right.  I talked to Dr. Gregg about dual ovarian stimulation, something a friend had told me about.  She had recently frozen her eggs in the UK and her doctor tried this relatively new procedure on her. First collection is done using your natural cycle and then immediately after egg collection you start the stimulation injections again for another week before second egg collection is carried out.

This process has been seen to be quite successful in older patients such as myself with low ovarian reserve and typically the second collection has seen a high collection of eggs than the first collection, PLUS a real benefit is that there is no chance of ovulating during the second collection so that’s one less injection to take from day 6 – day 10!

I asked Dr. Greg about this to see if he had tried it with any patients before.  To my surprise he said he was all for trying this with me and infant his clinic was an early pioneer of this medical advancement and they had a high success rate!

I tried to avoid the ‘why on earth am I having to suggest it to you then!’ and stayed zen and looked at this as an opportunity to hopefully get lots of mature eggs this month.

Apparently the doctor can only tell if the second stimulation round is worth trying once the first collection has been done and he can see if there are any small follicles that might grow.  So its a waiting game now, some healthy living, and early nights so that the follicles grow.  Fingers and toes crossed.

When To Freeze Your Eggs

Reality Ahead

In the UK eggs can usually be frozen for up to 10 years, unless there are special medical circumstances and then this can be extended.  When you go to use your eggs you can do so with a partner or using donor sperm, you can also choose to export your eggs to another country and use them there. In the UAE as far as I can decipher the law is different.  You can actually freeze your eggs here, but there are restrictions around their use.  They can be frozen for up to five years, you can only use them if you are married and you can not export them out of the country to use.

Generally speaking egg quality is better when you are younger (in your 20s or 30s) and as you get older you become less fertile and your egg quality declines.   This decline increases significantly after 35.

It is a difficult question to know when you should go ahead and freeze your eggs.  Ideally you would do it when you are at your most fertile, in your 20s, but firstly who has that kind of cash at 20!? (because the process is not cheap) and secondly who wants to openly admit in their 20s that by the time they are 40 (when they are likely to have diminishing ovarian reserve (DOR)) that they aren’t going to have met ‘Mr Right’ and already be a mother?  I know I hadn’t even heard of ‘egg freezing’ when I was 20!

Family or careerSo now, women like me, who have hit their late 30s or 40s, been focusing on a career and haven’t yet met Mr Right have the option to try, at this late stage, and freeze their eggs or give up their dream of becoming a biological mother. There are some companies like Apple and Facebook, who are moving in the right direction by offering to pay for female employees to freezing their eggs so as to delay motherhood a little longer.  These companies, in my view, have got it right and I wish there were more like them and that egg freezing was more accepted, not something that is talked about behind closed doors.

A single female should be proud of the fact that she is taking control of her declining fertility. Egg freezing should be openly talked about and accepted, it is an insurance policy and in my view a sensible option for a single women in their 30s who wants to one day possibly become a mother.

 

Basics about Egg Freezing

Egg-freezing-illo

Egg Freezing follows a similar process to IVF.  The first part of both Egg Freezing and IVF involves the stimulation of your ovaries using fertility drugs.  There is no such thing as a ‘typical round‘ but generally speaking starting on day 2 or 3 of your period, you inject hormones into your stomach each day with the hope that as many follicles as possible will grow.  You have regular scans and blood tests every few days during the stimulation phase to measure the follicle growth and check your hormone levels which will indicate if the process is working or not.   Usually the stimulation phase lasts about 10-12 days. During this time hopefully all the follicles will grow to a good size.  When the majority of them are around 18-22mm, you are ready for egg collection.

The next hurdle is to see how many of the follicles contain an eggs (some are empty this is not possible to see from your scans).  The eggs are collected under ultrasounds scan guidance using sedation and then examined by an embryologist to see if they are mature or not.  The mature ones are able to be frozen and any others are discarded.

There are many things that can cause problems or force a cycle to be cancelled during the stimulation or egg collection process. I only know a handful of the things that have happened to me on my journey so far.  Below are a few that I wish I had known when I started my egg freezing journey:-

  • On day 2 or 3 of your period you might not be able to start treatment for many reasons eg: a cyst, no follicles etc
  • During the stimulation phase your body may not react to the hormones at all.  This may be seen through your blood work or the fact that on your scans the follicles are not growing
  • You might have many follicles on your day 2/3 scan but then only a few may grow
  • You might ovulate before egg collection
  • You might have several follicles that grow, but they may not contain any eggs
  • You might have eggs collected but they might not be mature and thus not be able to be frozen

And this is all BEFORE you get into the ‘defrosting’ of these eggs to hopefully use them for a pregnancy!